Dementia Conversations
MHA Volunteers talk about Dementia Champions sessions
We made a film with MHA Volunteers, sharing reflections on learning together and going forward as dementia champions.
MHA Volunteers: Dementia Champions Positive Support Poster
We worked together with MHA Volunteers to develop a Dementia Champions checklist for positive support:
MHA Social Group: What people living with dementia want to tell us
What is dementia?
Dementia is when I can’t remember people, I go blank.
I hide it from people.
For me it means loss of independence.
Getting people mixed up.
Forgetfulness.
Memory clinic.
It means having to have a lot of patience.
What does life with dementia feel like?
There’s a lot of frustration, with myself.
I can feel bad tempered, irritable.
It’s about loss, it can affect your memory.
It can be really embarrassing.
It all depends on the person.
Family is very important.
What do you want people to know about dementia?
For me its about determination.
Listening to others and taking advice is important.
You notice when someone has a lovely smile.
I’m stubborn, dementia won’t beat me.
It’s about taking charge.
reassurance and patience is needed.
Respect, empathy and caring, teamwork.
What advice do you have for people?
A sense of humour helps.
Take your time, sometimes stop and come back to it.
be determined, set targets to do more.
keep trying even when it’s hard.
Being able to ask for help is important.
Accepting help when it is offered.
Being firm and clear, making decisions matters.
Independence , I want to do things for myself.
What helps and what works?
People and clubs,company, storytelling.
keeping our brain active, wordsearches…
sheltered accomodation, with my own room, shared lounge, rules and meals.
keeping fit and healthy, variety stops it getting boring.
going out and about, meals, museums and shopping.
Going outdoors, plants and gardening.
art, making art in our own style.
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